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Donate Life - Nebraska - Inspirational - Donate Life Nebraska - Page 6


Donate Life Nebraska

Real stories about organ, eye and tissue donation in Nebraska.

Daisy's Story

My daughter Daisy belts out show tunes like Ethel Merman.  “I can’t believe she took you away from Broadway,” a nurse once told her, referring to our move from New York to Omaha.  Annie.  Dreamgirls.  Mama Mia. Name it, she’ll sing it, over and over and… Not surprising, given her sparkly spirit.  And a fact that surprises everyone who meets her: Daisy spent her first seven months in the Neonatal Intensive Care Unit, coddled by a captive audience of care-takers.

In February, 2003, Dais was born with Gastroschisis, a rare congenital defect in which her large and small intestines developed outside her body, in the amniotic fluid.  After birth, surgeons whisked her off to the O.R. b2ap3_thumbnail_IMG00380-20100423-15462-300x225.jpgand attempted to save her bowels, which were mostly necrotic.  Two weeks later, a majority of her intestines were removed.  Daisy’s new diagnosis (Short Gut Syndrome) and anatomy (or lack thereof) made her unable to absorb enough nutrients.  She survived on tube feeds and TPN—Total Parenteral Nutrition, an IV fluid which contained a fat emulsion that often destroys the liver.  Fortunately now there’s Omegaven, an omega 3-based lipid solution made from fish oil that can reverse or ameliorate liver disease.

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Sharon's Story

In the spring of 1988, my senior year of high school, I was diagnosed with mononucleosis and sent home with instructions to get lots of sleep and limit my activity, as well as follow up with the doctor in two months.  The follow up turned out to be a referral to see an internal medicine physician as my liver function tests had not improved.

After several weeks of tests I was diagnosed with a liver disease called Primary Sclerosing Cholangitis, In primary sclerosing cholangitis (PSC), thb2ap3_thumbnail_Bothwell-NE-organ--Tissue-04.jpge bile ducts inside and outside the liver become inflamed and scarred. As the scarring increases, the ducts become blocked, causing liver damage. This disease is not commonly found in eighteen year old girls, and physician who diagnosed me basically sent me home with very little hope that my disease could be cured.

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Heart Strings

Sybil Jackson has a big heart.  “What keeps me going is the fact that, at the end of the day, I have made a difference in another individual’s life,” says Jackson, 35, a one-time manager for a group home for the developmentally disabled.  What also keeps Jackson going is a life-saving gift she received on Memorial Day, 2009: A new heart.

Like many transplant recipients, news that she would need a new organ came as a shock.  “I thought I just had pneumonia,” says Jackson, who, in 2003 – three months before her wedding – got a double diagnosis: Congestive heart failure and dilated cardiomyopathy, a condition in which the heart becomes weakened and enlarged and cannot pump blood efficiently.  She was 27.  “My doctor whisked me back into a room and asked, ‘Do you know how sick you are?  You need a transplant.  If you don’t get a transplant, you’ll be dead in five to ten years.’”

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Lisa's Story

b2ap3_thumbnail_425728_10151408075088313_2044732178_n.jpgA few weeks ago, we introduced you to Lisa, our Donate Life Nebraska president, who was waiting for a heart transplant. We are delighted to announce that she has received her new heart and has shared this update to her blog:

Tuesday, November 13th

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Mike’s Story: Journey to the See

“As you walk the journey, you begin to see what you really need to see.”

My story began long before my personal journey when someone demonstrated compassion, courage, generosity and forethought and became a donor. I have been a recipient of that act of kindness on four different occasions. The opportunity to live my life with the ability to see all of the wonderful things around me is a gift; my wife, children, grandchildren, family, friends, colleagues and all the beauty of nature would be shadows without it.

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